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Genetics and Health

Spina Bifida and Blog of the Week: Spina Bifida Moms

by Hsien Hsien Lei, PhD on September 10th, 2005

If you’d like to have your blog featured in this weekly series, please leave a comment below.

This week’s featured blog is Spina Bifida Moms written by Amy Linder, a 30-something mom with spina bifida. The Spina Bifida Moms blog serves the spina bifida community in more than one way.

A few years ago, when Amy was planning her pregnancy, she had a hard time finding information for mothers with spina bifida as opposed to parents of children with spina bifida. So her mission is to share resources that pertain to everyone with spina bifida from the youngest to the oldest.

When Amy became pregnant a few years ago, doctors told her she had a slightly increased risk of having a child with a birth defect: 1-2 percent vs. 0.1 percent in the general population. Happily, their daughter Sweetie was born a healthy girl at 37 weeks and is now an adorable two-year-old.

Amy’s writing is engaging - she shares her personal story and motivates others to think positively. Almost everyone will identify with Amy’s journey as a woman, mother, and disabled person.

Last weekend, she wrote,

As a disabled woman, I also feel for my disabled companions in the New Orleans area. People who may not have been able to evacuate because of their condition, or were in hospitals that had to be evacuated when Katrina was about to hit. And for the thousands of survivors who have been injured by the storm and/or trying to pick up the pieces afterwards. I know I cannot get around as easily as others and need the added help of both my braces and walking stick to easily move about. If I was caught in the eye of such a storm I would be hard pressed to be able to protect myself because of my physical limitations. I pray that everyone who needed and still needs that added bit of life assistance was granted it in evacuation from the storm and in life moving forward.

Spina Bifida Moms had its 1,000th hit on Saturday, I’d encourage you to visit Amy and help crank up her hit counter!

For more information, please see my recent post on folic acid, genes, and spina bifida.

POSTED IN: Featured Genetics and Health Blogs

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