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Genetics and Health

Archive for the ‘Genetic Ethics’ Category

May 7th, 2008

Genetic Ethics - testing and storing our kids’ DNA

 
Scientists and policy developers at the Translating ELSI, Ethical Legal Social Implications of Human Genetics Research conference have been mulling over the myriad of ethical arguments over testing and storing our kids’ DNA.
The biggest driver for the advancement of genetic testing is the ‘early detection improves outcomes’ argument and if an individual is found to be at […]

By Elaine -- 1 comment

May 7th, 2008

Genetic testing ethics - consent forms becoming incomprehensible

Following my recent article on ethical guidelines for informed consent in genomic studies, a group of scientists met at the Translating ESLI conference in Cleveland to debate this whole ethical argument. This issue is particularly critical for genome-wide association studies and in establishing and using large biobanks.
It was universally acknowledged that consent forms are difficult to read for […]

By Elaine -- 0 comments

April 12th, 2008

Navigenics - the whole interview

G&H’s INTERVIEW WITH NAVIGENICS
Navigenics approached Genetics and Health for an interview. With so much written about similar genomics companies such as 23andme, Knome, deCODE genetics, I was intrigued to learn more about this company.  In particular, Navigenics appears to be the only company within this industry genre who provides a comprehensive wellness model – a […]

By Elaine -- 3 comments

April 11th, 2008

Navigenics #7 - “The barriers to success”

Concluding G&H’s exclusive interview with Navigenics’ Medical Director Dr Michael Nierenberg, we explore the challenges faced by Navigenics to integrate its genomic services into mainstream medicine … 

When founding my old company Opaldia, probably the single most challenging aspect of early adoption of genetic testing was physician barriers.  Mostly this was borne out of a genuine lack of understanding […]

By Elaine -- 0 comments

April 11th, 2008

Navigenics #6 - “Privacy, Insurance, GINA and Ethics”

Continuing G&H’s exclusive interview with Navigenics’ Medical Director Dr Michael Nierenberg, we explore the whole issue of privacy, insurance, GINA and ethics…..
One of the main consumer concerns is that of privacy of information, both in terms that a genetic test has been undertaken but also that the results of the test are kept private and out of the […]

By Elaine -- 1 comment

April 10th, 2008

Navigenics #5 - “Corporate or pragmatic genomics?”

In this fifth article in the series of articles originating from G&H’s exclusive interview with Navigenics’ Medical Director, Dr Michael Nierenberg, we explore the contentious issue of whole genomic testing.
Navigenics uses Affymetrix’s gene chip which is able to test around 1 million genetic markers.  However Navigenics has initially focused on 18 specific, treatable diseases which […]

By Elaine -- 1 comment

March 26th, 2008

Ethical guidelines for whole genome studies

It’s been quite a month for genetics and ethics!  There has been much commentary on GINA (Genetic Information Non discrimination Act) and now an influential academic group have developed an ethical framework of recommendations to encourage individuals to join whole-genome association studies.
According to a large group of genomics scholars, researchers, ethicists, and policy designers and watchers, in order […]

By Elaine -- 2 comments

March 26th, 2008

GINA - Doctors side with legislation

Following my article on GINA (Genetic Information Nondiscrimination Act), the influential doctors’ group, the American College of Physicians (ACP), wants the GINA to become law.
The ACP does not directly address the concerns of employers or health insurance companies, but sides with the GINA supporters on individual rights to insurance protections. The ACP agrees that insurance providers […]

By Elaine -- 1 comment

March 18th, 2008

Genetic testing - ‘recreational genomics’ or the future of diagnostics?

In January, The New England Journal of Medicine published an article criticizing the popularization of genetic testing by companies such as 23andme, deCode, Navigenics and Knome who doctors believe are introducing genetic testing prematurely into a commercial setting and confusing public and medics alike.  The authors of this article coined the phrase ‘recreational genomics’ for this type of testing.
While […]

By Elaine -- 3 comments

March 8th, 2008

Galileo’s body to be exhumed for DNA testing

 
Galileo’s tomb 
Over 360 years ago Galileo died living as a recluse in Italy, a convicted heretic.  His crime - he fell foul of the religious authorities of the day by arguing that the Earth revolved around the sun and not vice versa.  His theory was subsequently found to be perfectly true.
Italian researchers, led by Prof Paulo Galluzzi, want to […]

By Elaine -- 4 comments

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