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Thank you to Alyssa Friedland from Genetic Alliance for this press release - a momentous occasion in the field of genetics. I have decided to issue the press release in its entire form. You may think me biased but the arguments put forward in the statement are cogent, well thought out and they echo my own […]
Scientists and policy developers at the Translating ELSI, Ethical Legal Social Implications of Human Genetics Research conference have been mulling over the myriad of ethical arguments over testing and storing our kids’ DNA.
The biggest driver for the advancement of genetic testing is the ‘early detection improves outcomes’ argument and if an individual is found to be at […]
Following my recent article on ethical guidelines for informed consent in genomic studies, a group of scientists met at the Translating ESLI conference in Cleveland to debate this whole ethical argument. This issue is particularly critical for genome-wide association studies and in establishing and using large biobanks.
It was universally acknowledged that consent forms are difficult to read for […]
The Washington Post featured a series of thought-provoking articles in ‘The Science Century’ section of the newspaper.
Here are some of my favourites:
The Post’s Joel Achenbach writes about how “the most important things
happening in the world today…[will] be happening in laboratories — out
of sight, inscrutable and unhyped until the very moment when they change
life as we […]
G&H’s INTERVIEW WITH NAVIGENICS
Navigenics approached Genetics and Health for an interview. With so much written about similar genomics companies such as 23andme, Knome, deCODE genetics, I was intrigued to learn more about this company. In particular, Navigenics appears to be the only company within this industry genre who provides a comprehensive wellness model – a […]
Concluding G&H’s exclusive interview with Navigenics’ Medical Director Dr Michael Nierenberg, we explore the challenges faced by Navigenics to integrate its genomic services into mainstream medicine …
When founding my old company Opaldia, probably the single most challenging aspect of early adoption of genetic testing was physician barriers. Mostly this was borne out of a genuine lack of understanding […]
Continuing G&H’s exclusive interview with Navigenics’ Medical Director Dr Michael Nierenberg, we explore the whole issue of privacy, insurance, GINA and ethics…..
One of the main consumer concerns is that of privacy of information, both in terms that a genetic test has been undertaken but also that the results of the test are kept private and out of the […]
Icelandic company deCode Genetics has announced it has signed a Letter of Intent to offer its genetic testing products to US Preventative Medicine customers.
US Preventative Medicine is a Dallas based company. The company has developed a suite of prevention, early detection and chronic condition management products and services that improve health outcomes while reducing health […]
Following my recent article titled “Genetic testing - ‘recreational genomics’ or the future of diagnostics”, I queried why doctors were finding it challenging to provide their patients with adequate information on genetic testing and I questioned whether there should be increased availability of training courses to help support doctors.
On cue, a report published in JAMA concludes just that … […]
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