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Scientists and policy developers at the Translating ELSI, Ethical Legal Social Implications of Human Genetics Research conference have been mulling over the myriad of ethical arguments over testing and storing our kids’ DNA.
The biggest driver for the advancement of genetic testing is the ‘early detection improves outcomes’ argument and if an individual is found to be at […]
Following my recent article on ethical guidelines for informed consent in genomic studies, a group of scientists met at the Translating ESLI conference in Cleveland to debate this whole ethical argument. This issue is particularly critical for genome-wide association studies and in establishing and using large biobanks.
It was universally acknowledged that consent forms are difficult to read for […]
G&H’s INTERVIEW WITH NAVIGENICS
Navigenics approached Genetics and Health for an interview. With so much written about similar genomics companies such as 23andme, Knome, deCODE genetics, I was intrigued to learn more about this company. In particular, Navigenics appears to be the only company within this industry genre who provides a comprehensive wellness model – a […]
Continuing G&H’s exclusive interview with Navigenics’ Medical Director Dr Michael Nierenberg, we explore the whole issue of privacy, insurance, GINA and ethics…..
One of the main consumer concerns is that of privacy of information, both in terms that a genetic test has been undertaken but also that the results of the test are kept private and out of the […]
It’s been quite a month for genetics and ethics! There has been much commentary on GINA (Genetic Information Non discrimination Act) and now an influential academic group have developed an ethical framework of recommendations to encourage individuals to join whole-genome association studies.
According to a large group of genomics scholars, researchers, ethicists, and policy designers and watchers, in order […]
Leon Kass served as chairman of the bioethics council charged with advising US President George W. Bush on many “hot” bioscience issues such as stem cell research and cloning.
Noted for his frankness and pretty much misogynistic ideals, once you cut through all this, his arguments do make some sense. For example:
“There’s a large cultural bias toward progress, […]
Bioethics frustrates me. As much as I’d like to have a firm opinion on genetics issues, I find myself waffling more often than not. I understand both sides and while I know what I would do personally, I don’t have the confidence to tell others what to do. (Surprised?)
Fortunately, there are others who spend their […]
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