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Thank you to Alyssa Friedland from Genetic Alliance for this press release - a momentous occasion in the field of genetics. I have decided to issue the press release in its entire form. You may think me biased but the arguments put forward in the statement are cogent, well thought out and they echo my own […]
G&H’s INTERVIEW WITH NAVIGENICS
Navigenics approached Genetics and Health for an interview. With so much written about similar genomics companies such as 23andme, Knome, deCODE genetics, I was intrigued to learn more about this company. In particular, Navigenics appears to be the only company within this industry genre who provides a comprehensive wellness model – a […]
It’s been quite a month for genetics and ethics! There has been much commentary on GINA (Genetic Information Non discrimination Act) and now an influential academic group have developed an ethical framework of recommendations to encourage individuals to join whole-genome association studies.
According to a large group of genomics scholars, researchers, ethicists, and policy designers and watchers, in order […]
Following my article on GINA (Genetic Information Nondiscrimination Act), the influential doctors’ group, the American College of Physicians (ACP), wants the GINA to become law.
The ACP does not directly address the concerns of employers or health insurance companies, but sides with the GINA supporters on individual rights to insurance protections. The ACP agrees that insurance providers […]
In January, The New England Journal of Medicine published an article criticizing the popularization of genetic testing by companies such as 23andme, deCode, Navigenics and Knome who doctors believe are introducing genetic testing prematurely into a commercial setting and confusing public and medics alike. The authors of this article coined the phrase ‘recreational genomics’ for this type of testing.
While […]
A broadly supported piece of legislation drafted to protect Americans from genetic discrimination in the workplace and by health insurance companies has passed in the US House of Representatives.
The Genetic Information Nondiscrimination Act (GINA) passed in the House provides for equity of health insurance coverage for mental disorders and substance abuse-related disorders.
“Given that most mental […]
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